FRONTLINE HIV Forum Meeting 6th June 2012

Date: 6th June 2012
Time: 6:00pm – 8:00pm

Attendees: 6
Apologies: 3

The next ordinary meeting of the Forum will be held at the Kobler Clinic, Wednesday 4th July on the 4th Floor of the St Stephens Centre, from 6:00pm to 8:00pm.

This document details the discussions held by the Frontline Forum members at the last meeting. They are not complete minutes, more notes or points loosely captured in no particular order; apologies for points missed. Many thanks go to those who participated, and well as to those who continue to contribute through the online forum.

HIV Adherence support programme
Dr. Rachel Davis from Atlantis Healthcare gave a presentation on her proposal to build patients HIV adherence support programmes. This is a new type of service that has not been carried out previously.

Dr. Davis gave a brief history of Atlantis Healthcare’s work since its establishment in1993 in building bespoke campaigns that meet the needs of individual patients responding to their concerns and priorities on a one to one basis. The company operates in 43 different countries. The company’s large group of leading health psychologists build these programmes to help with medication adherence and self management of a condition.

With HIV tailored programmes would be made that would meet each patient’s individual needs. Research has shown that up to a third of patients do not take their medication in the correct way.

Atlantis Healthcare takes a holistic approach in their adherence support programme by helping patients understand their own perception of their medication, and helping them to maintain their adherence. Patients are motivated to evaluate their own health management. The aim is to provide patients with support and skills on how to engage with health care professionals. Aids that would help patients with adherence were proposed. “Smart” caps on medication bottles which monitor date and time of medication use. Text messages to prompt patients to take their medication.

A forum member raised concerns about the type of message that would be sent, in that the message should contain no information about medication or HIV which could break confidentiality.

Dr. Davis asked the forum if we thought that we needed the service. The forum chair said that we would be looking for 95% upwards adherence rates. It was felt that the programme may be useful to young people and people who are newly infected.

The forum thanked Dr. Davis who said she would be happy to return to update.

Terrence Higgins Trust HIV+ website
Gary Brough (Membership Manager) Terrence Higgins Trust is to be invited in July to talk about “My HIV+” website.

The next meeting of the KVN Forum will be held at:
The Kobler Clinic
4th Floor,
St Stephens Centre
Chelsea and Westminster Hospital

6:00pm to 8:00pm
On Wednesday 4th July 2012

Refreshments provided

Please forward all points/suggestions for next meeting to the online forum, or directly to Paul at chair@frontlinehiv.net and the Agenda will be posted to the online Forum, with any additional points added to it as they are sent in.

Future Meetings:

• Wednesday 5th September
• Wednesday 3rd October
• Wednesday 7th November