FRONTLINE HIV Forum Meeting 4th July 2012

Date: 4th July 2012
Time: 6:00pm – 8:00pm

Attendees: 7
Apologies: 2

The next ordinary meeting of the Forum will be held at the Kobler Clinic, Wednesday 5th September on the 4th Floor of the St Stephens Centre, from 6:00pm to 8:00pm.
This document details the discussions held by the Frontline Forum members at the last meeting. They are not complete minutes, more notes or points loosely captured in no particular order; apologies for points missed. Many thanks go to those who participated, and well as to those who continue to contribute through the online forum.

Please note: there will be no meeting in august (summer break)

This document details the discussions held by the Frontline Forum members at the last meeting. They are not complete minutes, more notes or points loosely captured in no particular order; apologies for points missed. Many thanks go to those who participated, and well as to those who continue to contribute through the online forum.

London Study of the Impact of Ageing with HIV (LSIAH)
Peter, the Project Manager of the Ageing Project, came to update the forum. The new name of the ageing project (LSIAH) was decided upon because it’s specific and it makes it unique to us.

The study has been peer reviewed by a Professor of Medical Statistics and Epidemiology, who is an expert peer reviewer and who is independent from the research team. The Professor recommended the study for sponsorship approval, but with the main concern being that the study questionnaires are very long and that they may cause questionnaire fatigue. The large sample size required was another concern.

Responding to these concerns may see the study modified, reduced with less questions, after the pilot study. Which questions will be modified, removed, has yet to be decided.
Peter hoped that the study would be sent for ethical approval in a couple of weeks for an August start.

The Partner Study: A new study for couples when one partner is HIV positive and the other is HIV negative
Alice Nightingale, Research Nurse at St.Stephens Centre, came to inform the forum about The Partner Study, a new study for sero-discordant couples. This new study is looking at the risks of HIV transmission when someone is taking effective HIV treatment. It wishes to particularly focus on partnerships that do not always use a condom when having sex. It hopes to advise and counsel such patients.

This is an international collaborative study taking place in several European countries.
By taking part you would be contributing to knowledge about HIV transmission, and helping yourself and others make more informed decisions about risks in the future. Results will help researchers design more effective health programmes, which could also reduce new infections.

To take part in the study one partner has to be HIV positive and the other partner HIV negative. The partners will have had unprotected sex together in the last month. The partners expect to have sex together again in the coming months. The study involves both partners completing questionnaires every 3-6 months for two years, with the HIV negative partner being tested for HIV each time. The questionnaires will be self-completed and in confidence. They will not be seen by anyone at your clinic. Researchers at the study coordinating centre will only see a number and not your name.

If a transmission occurs between the partners, they would both be asked to provide a blood sample so that the two viruses can be compared to see how similar they are. This testing will be anonymised, and neither of the partners will be told the results of this comparison.

A relationship break-up would exclude those ex partners from the study.

The next meeting of the KVN Forum will be held at:
The Kobler Clinic
4th Floor,
St Stephens Centre
Chelsea and Westminster Hospital

6:00pm to 8:00pm
On Wednesday 5th September 2012

Refreshments provided

Please forward all points/suggestions for next meeting to the online forum, or directly to Paul at chair@frontlinehiv.net and the Agenda will be posted to the online Forum, with any additional points added to it as they are sent in.

Please note: there will be no meeting in august (summer break)

Future Meetings:

• Wednesday 3rd October
• Wednesday 7th November
• Wednesday 5th December