FRONTLINE HIV Forum Meeting September 2010

FRONTLINE HIV Forum Meetings:
Members: General Members Forum held at The Kobler Clinic, 4th Floor

Date: 7th September 2010
Time: 6:00pm – 8:00pm
Attendees: 10
Apologies: 2

The next ordinary meeting of the Forum will be held at the Kobler Clinic, Tuesday 5th October on the 4th Floor of the St Stephens Centre, from 6:00pm to 8:00pm.

This document details the discussions held by the Frontline Forum members at the last meeting. They are not complete minutes, more notes or points loosely captured in no particular order; apologies for points missed. Many thanks go to those who participated, and well as to those who continue to contribute through the online forum.

Angela and Lesley from Kobler Day Care gave a presentation explaining the proposed changes that would effect a more structured approach, thus reducing waiting times. To help allocate specific staff to structured appointments, patients should first refer by telephone giving details of their condition. The nurse would then assess the patient and if required make an appointment for them. If the nurse’s assessment was that the patient’s condition was really serious they would advise that patient to go to accident and emergency straight away. If the patient’s condition was assessed to be treatable by Kobler Day Care then an appointment would be scheduled for the patient at an appropriate time when specific staff would be there. There would be a rota of nurses to answer the dedicated phone line in the hours this service would be operating – from 9am to 2pm. This triage time would allow for proper direction and coordination of doctor availability.

A forum member asked how this would affect patient’s who chose not to see a GP.
A GP’s consortium is to be established by mid October in A+E. The GP in that service is only a facilitator to send the patient to whichever department they require, or Day care.

Patients cannot register with this GP service.
A forum member asked if the GP’s have access to hospital records. Those present were unsure, so this has to be confirmed.

Patients are to be allocated a 12 month script; however they will only receive 3 months supply each time.
Concern was expressed over the shortage of the protease inhibitor medicine “Prezista”, Darunavir, due to a supply source problem from the manufacturer. At present only one months supply is being issued to patients, to manage this temporary problem to ensure that the clinics do not run out. This problem should be resolved by mid October. Contact details of the manufacturer “Tibotec”, a division of Janssen-Cilag International NV, is to be sought so that forum members can make enquiries to them if they wish.

An invitation is to be extended to the head pharmacist to attend the next meeting to explain the situation.

This research project is about offering self aware patients the ability to take control of their HIV medications, by means of self medicating, whilst they are in the ward in hospital. It is hoped that this will encourage patients to compliance, and will help the newly diagnosed to establish their regime.

Patients would only be allowed to self administer their anti-retrovirals. Any separate new drugs which may be needed for their current condition would be administered by nurses.

Secure lockers in the ward are to be provided where patients can store their medications.

An invitation is to be extended to Mr. Chris Birch who has been a Chelsea and Westminster Hospital trustee for several years to attend the forum meetings, after he expressed an interest. No objections were raised by those forum members present and we look forward to his valued contribution.

Progression of this project has been delayed due to ill health, and extraordinary pressure of work in other projects undertaken by the project lead. A meeting is to be arranged sometime in the near future when medical staff and the project team can decide the best way to proceed.

A joint programme from Chelsea and Westminster HIV Clinics and Terrence Higgins Trust to provide training for people living with HIV, in peer support for others who are living with HIV. This training, jointly facilitated by staff from Chelsea and Westminster HIV Clinics, and the HIV Health Support Service at THT, will consist of six consecutive sessions on Tuesday afternoons from 1pm till 4.30 pm, on the
26th October,
2nd November,
9th November,
16th November,
23rd November, and
30th November.

Applicants will need to attend the training on all of these dates.

All sessions will take place at St. Stephen’s Centre, Mansfield Conference Room.
Lunch and teas and coffees will be provided.

People interested in taking part in this training, which leads to certification, should first express an interest by telephoning Linda Connors on 0208 846 6136, to arrange an interview.
Deadline for expression of interest: 1st October 2010.

Polari online gay magazine wishes gay men who have been living with HIV for some time to get in touch with them to get to know their attitude towards their situation. They are especially interested in men from either the older or younger end of the age spectrum.

Anyone interested in participating should contact Mr. Christopher Bryant, Editor in Chief, at:

The next meeting of the KVN Forum will be held at:
The Kobler Clinic
4th Floor,
St Stephens Centre
Chelsea and Westminster Hospital

6:00pm to 8:00pm
On 5th October

Refreshments provided

Please forward all points/suggestions for next meeting to the online forum, or directly to Paul at and the Agenda will be posted to the online Forum, with any additional points added to it as they are sent in.

Future Meetings:

  • Tuesday 2nd November
  • Tuesday 7th December